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Your Link to Care After Cancer
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Below are resources to help you use SurvivorLink™ easily and effectively. If you do not find the answer to your question below, please send us an email (webadmin@cancersurvivorlink.org) or use the Contact Us page to let us know and we will gladly assist you.

SurvivorLink™ Quick Start

Getting Started on SurvivorLink™

Frequently Asked Questions (FAQ)

(Click on a question to show/hide the corresponding answer)

SurvivorCare

How do I identify the specific healthcare needs of my patient/survivor?
  1. If your patient has a Survivor Healthcare Plan (SHP), the SHP will provide you and your patient with an individualized treatment summary, risk profile, and long-term surveillance plan.
  2. See the SurvivorCare 101 Quick Fact to learn more about the SHP.
  3. If your patient does not have a SHP, see below for information on "Where do I get a Survivor Healthcare Plan (SHP)?"
How long will my survivor need specialized healthcare?
  1. Childhood cancer survivors need lifelong screening for late effects. As survivors move into middle and late adulthood, their risk for developing certain medical conditions can increase. Following the recommended screening from the Children’s Oncology Group Long-term Follow-up Guidelines is the best way to ensure early detection of late effects.
  2. See the SurvivorCare 101 Quick Fact for more information.
What is a Survivor Healthcare Plan (SHP)?

A Survivor Healthcare Plan (SHP) is a long-term follow-up plan based on national guidelines and tailored to the survivor’s individual cancer treatment with the following sections:

  • Treatment Summary
  • Individualized Risk Profile
  • Individualized Monitoring Plan for Late Effects
Where do I get a Survivor Healthcare Plan (SHP)?
  1. Referring your patient to a Cancer Survivor Clinic is the best way to obtain a SHP. The Children’s Oncology Group has a Directory of Late Effects Services to help you find a clinic anywhere in the country. If your patient is Georgia, you can go to "Find a Survivor Clinic" for a list of clinics in Georgia.
  2. If attending a Survivor Clinic is not possible for your patient, you can create a SHP for your survivor using the Children’s Oncology Group Long-term Follow-up Guidelines.
How do I find a Survivor Clinic in Georgia?

Go to "Find a Survivor Clinic" to access programs providing survivor care in the state of Georgia.

How do I find a Survivor Clinic outside of Georgia?

The Children’s Oncology Group has a Directory of Late Effects Services to help you find a clinic anywhere in the country.

My patient was a pediatric cancer patient but is now an adult, where do I refer him/her for survivor care?

Call the center where your patient was originally treated for cancer and ask to speak to the survivorship office.

How do I learn more about the late effects of cancer therapy?

For general information on late effects, see the Survivor Care 101 continuing education Title module or Quick Fact. To learn more about a specific late effect, click on ‘Browse by Topic’ from the Provider Portal to expand a list of topics and select the late effect topic you are interested in.

Are there any good publications on long term effects of cancer therapy?
  1. Diller L, Chow EJ, Gurney JG, Hudson MM, Kadin-Lottick NS, Kawashima TI, Leisenring WM, Meacham LR, Mertens AC, Mulrooney DA, Oeffinger KC, Packer RJ, Robison LL, Sklar CA. Chronic disease in the Childhood Cancer Survivor Study cohort: a review of published findings. J Clin Oncol. 2009 May 10;27(14):2339-55.
  2. Edgar, A. B., Morris, E. M., Kelnar, C. J., and Wallace, H. B. Long-term follow-up of survivors of childhood cancer. Endocr Dev 2009, 15: 159-80.
  3. Hudson, M., Mertens, A., Yasui, Y., et al. Health status of adult long-term survivors of childhood cancer: A report from the Childhood Cancer Survivor Study JAMA 2003. 290: 1583-1592.
  4. Mertens, A., Liu, Q., Neglia, J., Wasilewski, K., et al. Cause-specific late mortality among 5-year survivors of childhood cancer: The Childhood Cancer Survivor Study. Journal of the National Cancer Institute 2008. 100: 1368-1379.
  5. Oeffinger, K., Mertens, A., Sklar, C., et al Chronic health conditions in adult survivors of childhood cancer. New England Journal of Medicine 2006. 355: 1572-1582.

SurvivorLink™ Health Record

What is a Health Record Manager?

When someone Adds a Survivor they are the health manager for that Survivor’s Health Record. The manager can choose the survivor’s clinic, upload health documents and invite healthcare providers to view the survivors’ Health Record. If the survivor is under 18 the manager should be their parent or legal guardian. If the survivor is 18 years or older the manager should be the survivor or survivor’s legal guardian.

Who may view my SurvivorLink™ Health Record?

Only the people you (Health Record Manager) invite will be able to view your SurvivorLink Health Record. As Health Record Manager you can revoke access at any time. You can see who has access to your Health Record and who has viewed your records under Manage.

What if I need access to my health record when I don’t have internet access or if the website is down?

It is always good to save a printed copy of your health information in the event of a medical emergency.

Registration

Who may register for a SurvivorLink™ account?

While SurvivorLink™ is targeted for healthcare providers and child cancer survivors (and their families), anyone may register for a SurvivorLink™ account.

What is the benefit of becoming a registered SurvivorLink™ user?

As a Registered user, you may:

  • Maintain a list of favorite items (QuickFacts, CMEs, Resources) found on SurvivorLink™
  • View a history of CMEs completed via SurvivorLink™ and reprint certificates at any time
  • Subscribe to quarterly email updates providing the latest information about SurvivorCare

Account

I forgot my password.

If you forgot your password, go to the Login page. Select "Forgot Password?" which will direct you to the password recovery screen. You will be asked to enter your email address, and then provide the answer to the question you entered when you registered for your SurvivorLink™ account. If you successfully answer the question, a new password will be emailed to you. We suggest you then login to your SurvivorLink™ account and change your password (Login, go to My Account...Edit Profile...Change Password).

How do I change my password?

Login to SurvivorLink™ using your current password. Go to the "My Account" page. Select "Change Password". Follow the instructions to change your password.

Continuing Education

What is required to complete a SurvivorLink™ Continuing Education module?

To complete a SurvivorLink™ Continuing Education module, you must read (Title) or view (video) the module. Upon completing the module, you must take a brief quiz to test your knowledge of the subject matter. To earn Continuing Education credit, you must score 80% or greater on the Quiz. Upon passing the Quiz, you must answer a brief feedback survey. After the feedback survey is complete, you will be presented with a printable certificate. If you do not pass the Quiz, you will be given the option of retaking the quiz or reviewing the Continuing Education module.

How can I reprint my Continuing Education certificate?

Only registered SurvivorLink™ users may reprint Continuing Education certificates. Login to SurvivorLink™ and go to the "My Account" page. Select "Completed Education" from the page menu. A list of completed Continuing Education modules that you passed will appear. Locate the module you want the certificate for and click the printer icon printer in the last column of the row. Your certificate will be presented; click the "Print Certificate" button, which will open a print window containing your certificate.

I completed a Continuing Education module when I was not logged into SurvivorLink™. How can I get this module to appear in my SurvivorLink™ account?

You will need the Confirmation Number provided when you completed the Continuing Education module (it was on the confirmation page and the certificate). Login to SurvivorLink™ and go to the "My Account" page. Select "View Completed CMEs" from the page menu. On that page you will see instructions for finding the CME and adding it to your account; enter your Confirmation Number in the box provided and click "Submit". If the Confirmation Number is found, it will be added to your list of completed Continuing Education modules.

Can I see a list of completed Continuing Education modules that I failed?

Login to SurvivorLink™ and go to the "My Account" page. Select "Completed Education" from the page menu. A list of completed Continuing Education modules that you passed will appear. To view Continuing Education modules that you failed, or to view all Continuing Education activity, select the corresponding item from the Display drop down list located just above the table.

Quick Facts

What is a Quick Fact?

Quick Facts are education sheets for healthcare providers designed to be a quick and easy tool to learn about late effects of cancer therapy. The Quick Facts are organized by organ system and include the treatments associated with developing different late effects. There are also links to patient education sheets (Health Links) and the COG Long Term Follow-Up Guidelines within each Quick Fact. Quick Facts are available in a PDF version and can be printed.

Favorites

What are Favorites?

Favorites are a custom list of CMEs, QuickFacts and Resources that you designate while using SurvivorLink™. Favorites are saved to your profile so you may easily recall and view the item at any time. Note: Use of Favorites require you to be a registered SurvivorLink™ user, and you must be logged into your SurvivorLink™ account to save and view Favorites.

How do I save a Favorite?

The way Favorites are saved depends on the type of Favorite you wish to save:

  • CME: On the CME module page there will be a star icon star icon near the top-right corner of the page. Click on the star to save the CME to your Favorites.
  • QuickFact: At the top of QuickFact page, there will be a star icon star icon. Simply click the star to save the QuickFact to your Favorites.
  • Resource: When viewing the Resources page, the far-right column of each Resource has a star icon star icon. Simply click the icon and the Resource will be added to your Favorites.
How do I delete a Favorite?

Login to your SurvivorLink™ account. Select "My Favorites" from the Toolbox. A list of your Favorites will appear. Delete the Favorite by clicking the trash can icon delete icon next to the Favorite and it will be deleted from your list.

Privacy

What is your Privacy Policy?

SurvivorLink™ is committed to your privacy. You can view our Privacy Statement here.

How can I protect the security of my/my child/my patient’s health information?

There are several steps you can take to ensure that the personal health information available to you on SurvivorLink is protected:

  • Never share your password with anyone else.
  • Never write down your password or store your password where someone can see it or steal it.
  • Change your password every 6-12 months.
  • If you suspect someone has used your user ID and password, change your password immediately and notify our privacy officer (see next bullet).
  • If you suspect someone has gotten your password or has inappropriately accessed or used personal health information from Survivorlink, report it to the privacy officer immediately:

    Ann Mertens, PhD
    Emory University
    2015 Uppergate Dr.
    Atlanta, GA 30322
    Phone: 404-785-0691
    e-mail: amerten@emory.edu

  • Never email your personal health information. Most email systems are not secure (i.e., not encrypted)
  • Do not connect to Survivorlink using an unsecured wireless network as unsecured networks have a high risk of someone stealing your information.
  • Always logout of Survivorlink when you are finished using it or close the browser window to end your secure connection.
  • If you/your child changes healthcare providers, be sure to cancel your former provider’s access to your SurvivorLink health record.
What should I do if I/my child changes healthcare providers?

If you/your child changes healthcare providers, you should share your SurvivorLinkTM health record with the new provider and cancel access to your health record for the former provider.

To share with a new provider:

  1. From the Toolbox, click 'My (Survivor's) Health Records'
  2. Click ’Manage.’
  3. Click the ‘Share’ icon.
  4. Follow the instructions on this page to share the patient's health record with the new healthcare provider

To cancel access to your former provider:

  1. From the Toolbox, click 'My (Survivor's) Health Recods
  2. Click ’Manage.’
  3. Click on the ‘Sharing List’ list icon.
  4. Find your former provider in the list and then select ‘Cancel Access’ to remove your former provider’s access to your health information.
SurvivorLink™ has been designed to increase awareness and knowledge about the life-long healthcare needs of pediatric cancer survivors, and increase communication about the specific healthcare needs of individual survivors between survivor and family, cancer survivor team, primary care provider, and healthcare subspecialists.
© 2009-2017 Emory University