SurvivorLink™ is Committed to Your Privacy
Last modified: June 25, 2014
At CancerSurvivorLink.org we recognize that privacy is
website offered by Emory University Department of Pediatrics and affiliated organizations,
with respect to the privacy of our online visitors. If you have any questions
CancerSurvivorLink.org does not collect personally identifiable
information without permission. Our website links to numerous other websites,
however, and CancerSurvivorLink.org cannot control and is not responsible for
the content or privacy policies of those websites.
Information we collect and how we use it
This site collects personal information when you register
for the site. When you register, we will need personal information such as
name, address, telephone number, and e-mail address so that we can provide
services to you through the website, like saving links to your ‘favorite’ items
on the site. We also offer a number of services that do not require you to
register for an account or provide any personal information to us.
When you send email or other communications to CancerSurvivorLink.org,
we may retain those communications in order to process your inquiries, respond
to your requests and improve our services.
services based on their profile. Cookies are small text files that do not damage
a visitor's system or files. Most browsers will allow a user to accept or deny
cookies. If a visitor rejects our cookies they may still use our site.
We may use your information for auditing, research and
analysis in order to maintain, protect and improve our services, prevent fraud
and misconduct, and ensure the technical functioning of our services. This will
include periodically performing statistical analyses of aggregate user behavior
and characteristics. We will use these analyses to measure interest in and use
of various areas on our website and to improve on our website's ability to
serve you better.
CancerSurvivorLink.org will discontinue contact with any
person upon written request. Those wishing to opt out of receiving communications
from CancerSurvivorLink.org can write: Ann Mertens, PhD; Emory University; 2015
Uppergate Dr; Atlanta GA, 30322 or e-mail firstname.lastname@example.org.
When you sign up for a particular service that requires
registration, we ask you to provide personal information. CancerSurvivorLink.org
and its affiliated organizations will not share personal information with
outside organizations or individuals except in the following limited
We have your consent. If you consent to participate in research
related to Cancer Survivorship, we may provide personal information
research purposes only. We require that these
parties have a research protocol approved by their organization’s Institutional
Review Board (IRB) or equivalent organization responsible for ensuring that the
privacy and other rights of research participants are protected. We also
require that they agree to process such information based on our instructions
confidentiality and security measures. Researchers will be required to provide
an approved IRB research protocol prior to receiving access to any data and
this research protocol will be required to include, as appropriate, an informed
consent and HIPAA authorization, or appropriate IRB waivers of these
At any time, you may decide to stop allowing your personal
information used for research.
You may change your current settings for
participating in research by going to My Account
and editing your profile.
We have a good faith belief that access, use, preservation or disclosure
of such information is reasonably necessary to (a) satisfy any applicable law,
regulation, legal process or enforceable governmental request, (b)
applicable Terms of Service
, including investigation of potential
violations thereof, (c)
detect, prevent, or otherwise address fraud,
security or technical issues
, or (d) protect against imminent harm to
the rights, property or safety of CancerSurvivorLink.org its users or the public
as required or permitted by law.
Non-personal (de-identified) or
aggregated information may be used
for research purposes
. For example, the number of users who viewed a
particular page or how many users registered for the website. Such information
does not identify you individually.
Our website has security measures in place to protect
against the loss, misuse or alteration of the information under our control.
Our servers are located in a locked, secure environment to guard against
unauthorized access to systems where we store personal data. Additionally, our
servers use firewalls to prevent unauthorized access to the servers from the
outside. Passwords and other security information in your profile is encrypted
to provide additional protection to your account.
CancerSurvivorLink.org processes personal information only
for the purposes for which it was collected and in accordance with this Privacy
Policy. We review our data collection, storage and processing practices to
ensure that we only collect, store and process the personal information needed
to provide or improve our services. We take reasonable steps to ensure that the
personal information we process is accurate, complete, and current, but we
depend on our users to update or correct their personal information whenever
time. Unless required by law, we will not reduce your rights under this Privacy
Policy without your explicit consent, and we expect most such changes will be
the changes are significant, we will provide a more prominent notice
information we have collected from you online, the practices of this site, your
interaction with this website or to correct and/or change contact information,
please write, phone, or email:
Ann Mertens, PhD
2015 Uppergate Dr.
Atlanta, GA 30322