Cancer SurvivorLink
Your Link to Care After Cancer
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About Cancer SurvivorLink

Cancer SurvivorLink was developed through the cooperative work of a pediatric cancer epidemiologist and the medical director of the Cancer Survivor Program at Aflac Cancer and Blood Disorders Center at Children’s Healthcare of Atlanta/Emory University and a health information technology engineer from Himformatics, a healthcare information technology consulting firm. The funding for the design and creation of SurvivorLink was through a federal grant from the Agency for Healthcare Research and Quality (AHRQ) in 2009.

The idea of SurvivorLink came from the need for survivors to be knowledgeable about their long-term health risk and able to advocate for their health care. SurvivorLink was developed as a patient-centric communication tool that served as a safe, secure repository for key health documents in an online health record for survivors, and then a mechanism in which survivors could share their online health record with providers through the continuum of their care.

The SurvivorLink Team has grown to include: a software engineer, a research nurse specialized in health education, an epidemiologist and a psychologist. The team continues to work to find innovative ways to utilize technology to optimize healthcare delivery and empower survivors as they advocate for their long-term healthcare.

SurvivorLink™ has been designed to increase awareness and knowledge about the life-long healthcare needs of pediatric cancer survivors, and increase communication about the specific healthcare needs of individual survivors between survivor and family, cancer survivor team, primary care provider, and healthcare subspecialists.
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